This has been on my mind lately. My dad is going through it, his sister has got it pretty bad and I apparently have the predisposed gene to get in my future.
I’m leaning no because I wouldn’t want to make my child go through slowly watching their dad’s mind leave them and also potentially pass it on to them when they get older.
It’s thrown me for a loop since I always imagined myself having kids and I’m around that age now.
What do you think?
Edit: I just want to say that I did not expect the kind of response this post got. I’m grateful for all of your comments and the perspectives it’s allowed me to peak into.
I also should mention that were I to have children they would most certainly not be burdened by being the crutch of my own personal journey of accepting and loving who I am. That is work for me alone and I would never unload that responsibility onto those I love and especially those who I’d be raising.
As for my partner not wanting kids, I would never consider forcing or persuading them to raise a child when they know for certain it’s not in their cards. This is another element in how I’ve been navigating this question. I love her with everything I have and I can’t imagine us being apart and yet there is a pang that lingers of the father I assumed I would eventually become.
Anyway, thanks again for your thoughtful replies. They’ve helped so much especially since this is the first time I’ve voiced these thoughts.
Problem is there’s a catch 22. If you’re not lucid enough to answer those questions, you’re not lucid enough side whether you live or die from a legal standpoint.
Every law I know that allows euthanasia requires that the person have a terminal illness and enough mental faculties to make the decision. You run the risk of a loved one getting tried for murder if you ask them to give you the drugs and you are not competent to make the decision yourself.
With diseases like this you get better and worse days. What one should do is do the test daily and track it. If you see gaps in the test results (like you see that last 2 days you didn’t take the test but don’t remember why, or failed the test yesterday) you end it. At this point it’s clear that the next step will no not knowing where you are at all so there’s no point at prelonging it. You should nitrogen gas ready somewhere.